SayWhatClub

Hearing Loss and Dementia

Hearing loss and dementia: Is isolation a factor?

by Chelle Wyatt

The link between hearing loss and dementia has been big news for the last couple of years. Because of this news, people seem to think if someone has hearing loss they’d better get hearing aids to keep from getting dementia. Also seen are giant ads using with information that scares people into buying hearing aids. This is wrong; this is people selling a product. The link between hearing loss and dementia is there, but by focusing on hearing aids only they are missing the bigger picture. Hearing aids are only PART of the answer.

Dr. Frank Lin, Otolaryngology, John Hopkins, has been researching the connection between hearing loss and dementia which you can find here. Lin says currently the main rehabilitative care being offered is hearing aids, and he goes on to say it’s not just about hearing aids, but ensuring people with hearing loss can communicate in all settings.

“Far more is involved.” – Dr. Frank Lin

Many deaf and hard-of-hearing people feel isolated when communication with friends and loved ones becomes difficult.

I believe it’s the isolation factor that typically comes with hearing loss that causes dementia, and that idea comes from personal experience. My grandma didn’t have hearing loss, she had diabetes. She thought her life was over as she knew it, there was no more joy to be had. (Sounds like the hearing loss diagnosis?) Once a very active and social person, she withdrew from those activities, her friends, and she stayed home running errands for necessity only. Her mental health began to decline, slow at first, and later it picked up speed. It was frightening to witness and from then on I associated isolation with mental decline.

Twenty something years later, hearing loss and dementia were linked – and my first thought was social isolation. People with hearing loss tend to isolate themselves, as it’s a noisy world out there, and hearing devices are far from perfect. Audiologists hand out hearing aids, program them, reprogram them if needed, and people still struggle socially.

Even though hearing aids may have a noise reduction program for restaurants, separating the waitress’s voice though the clattering of dishes, background music and talk from other patrons remains difficult. Poor acoustics in these environments make the situation worse, reverberation confusing hearing aids/cochlear implants further. Not just words are lost but whole sentences. This is where people start bluffing because they just want it over with.

Restaurant noise can be challenging for people who wear hearing devices

There’s a lot less of this confusion at home. Home is safer where the environment can be controlled. There are captions on the TV, books as easy friends, and embarrassing repeats can be avoided. It’s too risky in public, maybe that’s why my grandma stayed home. We aren’t given the proper tools and strategies to deal with this when they hand out hearing aids.

Another bummer is high dollar hearing aids can’t keep up in social venues such as theatres or at the movies. Dialog is lost in the booming background noises and/or overriding music. The dialog is delivered at a fast pace, just like some family functions. Conversation bounces around and by the time we figure out who’s talking, someone else is already speaking. This makes people with hearing loss feel left out, like an outcast in a sea of noise. They might resort to bluffing to give the appearance of fitting in, especially around people they know and love. Why? The words “never mind” or “I’ll tell you later” (which rarely happens) are also a dismissal. Maybe they were brave enough to ask for a repeat and then heard, “are your ears in?” We are shut out of the world communication.

Yes, we are wearing our hearing aids and they aren’t a magical fix. They are flawed, so repeats and certain accommodations will be needed. I’ve worn hearing aids for over 25 years now. For the first 16 years I thought something was wrong with me. I had expensive hearing aids, and I still had a hard time understanding speech. The feeling of inadequacy and the fear of judgement kept me socially withdrawn. What if I said something off the wall, again? Or maybe I’ll repeat what someone else already said, again. Easy street, in the short run, is to stay away from all dangerous situations.

Hearing aids do help and they have their place, but their limitations are not often discussed in full. If you’re lucky you run across someone knowledgeable about hearing loss, or happen to find the right book or article. It was a book for me and reading it, I finally understood why I hear the way I do and that hearing devices have their limits. What a relief to find out it wasn’t me after all, I’m just sorry it took me 16 years to learn that. It was freeing but anger soon followed. Why didn’t any one of the audiologists I had over the years tell me that? Why didn’t they offer me more support, isn’t that their job? After that I was on a mission to learn all I could about hearing loss and hearing aids. Here’s some of what I learned….

The big 3 of hearing aid limitations:

  • They only work well within 4-6 feet, after that their ability goes down.
  • If it’s a high frequency hearing loss, then hearing aids only replaces some hearing.
  • Even though digital hearing aids are better at masking some of the background noise, some noise is still overpowering for hearing aids. Bad acoustics can wreak havoc on hearing aids rendering them nearly useless.

How to conquer those limitations:

Most speech sounds fall within this yellow area on an audiogram.

LEARN ALL YOU CAN ABOUT YOUR SPECIFIC HEARING LOSS.

How do you hear and why? Where do you fall on the speech banana and what sounds of speech do you miss? If your audiologist didn’t explain this to you, make an appointment right now and have him/her explain it to you. They owe you that. That way you know more of what you need to make communication easier on you and those around you. In fact, take your significant other with you so they too understand

FIGURE OUT WHAT YOU NEED TO MAKE COMMUNICATION EASIER.

So many people with hearing loss don’t know what they need so let me give you a starting list.

  1. People need to be within 4-6 feet.
  2. They need to get your attention first so you’re prepared to focus.
  3. At all times they should face you when talking (you lip read some whether you know it or not).

Just those 3 rules will make communication easier on both parties. Create a habit together.

ADVOCATE FOR YOURSELF.

When you tell people what you need, you’re advocating for yourself. Woo-hoo! That’s a giant step forward and it’s absolutely okay to tell people what you need. The next step would be introducing yourself to new people with your needs. Here’s what I say: “I lipread.” (It gets them to face me pushing sound right at me and I can use lipreading in combination with my remaining hearing.) “I hear well enough to know you are talking but unless I’m looking at you I won’t understand much.” I’ve given them direction on how to communicate with me, there’s no guessing. If I don’t answer a question while looking down, I’m not rude, I didn’t hear/see.  

Look for this international sign that indicates access for the deaf and hard-of-hearing.

USE ASSISTIVE LISTENING DEVICES (ALDs).

Hearing aids pair wonderfully with assistive listening devices (ALDs). While out in public look for the symbol, an outline of an ear with a slash/dots. Typically there are FM systems and if you’re lucky you’ll find hearing loops which are even better. There’s also live captioning, called CART (Communication Access Real-time Translation) and caption devices in theaters (CaptiView and Sony Caption Glasses). If the public venue’s devices don’t work well, be sure to let them know because you’re not only advocating for your needs but you’re also advocating for people with hearing loss who come after you.

LOOK FOR CLASSES ON HEARING LOSS.

Most states have a Deaf and Hard of Hearing Center/Commission and offer some form of help. Here in Utah we have Hard of Hearing Assistants in rural areas who go to senior centers (younger people are able to attend some) to teach classes, free. They teach lipreading, Living with Hearing Loss (based on Sam Trychin’s work), tinnitus, hearing aids 101 and slow paced sign language classes. Most states aren’t exactly like Utah but they should be able to offer some direction or support. Lipreading and the sign language classes helped me. I can use my lipreading ability in noisy situations such as restaurants, even taking my hearing aids out so the noise isn’t distracting me. I had my husband learn the ASL (American Sign Language) alphabet to help me when I’m stuck on words. I now have more tools at my disposal, helping me to be more successful in a variety of situations. If a state agency isn’t available, check for other resources such as college classes, local hearing loss support groups and online support (SWC is a great start with email lists and Facebook groups) and…

FIND YOUR TRIBE!

Find others with hearing loss. Find the role models who make themselves available to help others.  Because they were once where you are, they can help you climb out of the isolation hole. The SayWhatclub (SWC) saved me twice in my life after big hearing drops; once in the late 90’s and again in 2009. Seek local support groups, and go to the hearing loss conventions each organization offers. SWC has an annual convention I can’t get enough of it, because I feel like I’ve come home.  The conventions have given me something to look forward to, to learn from (every single time) and enables me to meet new friends and greet old ones. It’s socialization in my environment with people who know how to talk to me. All workshops are captioned and have hearing loops. It’s a world catered to me.

The World Dementia Council has not declared hearing loss a risk factor, but social isolation is a risk.

Hearing aids alone will not combat dementia. Audiologists need to expand their services, or at least point all clients in a direction where they can grow with hearing loss. I might believe ads about combating dementia with hearing aids AND rehabilitative services. What if all audiologists made themselves aware of state agencies for deafness and hearing loss? What if they passed out information on available hearing loss organizations to every client? What if audiologists offered mentoring services, someone with personal experience in hearing loss to help with questions, doubts and self-confidence? What if audiologist offices offered once a month talks on different aspects of hearing loss and communication? Only then would I believe they were focusing on the link between hearing loss and dementia.

Hearing loss is not the end; it’s just a matter of learning another way of doing things.

Disclosing Your Hearing Loss: Why You Should Tell People You Can’t Hear

One of the more frustrating aspects of hearing loss is the constant need to explain it.  Frustrating it may be, but disclosing your hearings loss is vital to maintaining healthy relationships with the people around you.

Before I begin, I’m going to confess it took me a long time to get to the point that disclosure came naturally.  I didn’t know what to say.  I was afraid of ridicule or rejection.  Even though I did nothing to cause my hearing loss, I felt shame.  Eventually I realized that not disclosing my hearing loss caused more embarrassment than admitting it, and so I began telling people.

If you are late-deafened like me, and your speech has not been affected by hearing loss, most people aren’t aware of your hearing challenges.  Even if they can see your hearing devices, they may view them the same way they view eye glasses.  Here is a list of things deaf people do– that YOU might be doing too–  and why we need to tell others we can’t hear.

WHY YOU SHOULD TELL PEOPLE

 

we behave differently.

Many of us compensate well enough to mask our hearing loss, but not quite well enough to seem “normal.”  Most people don’t understand why you behave the way you do.  Hearing loss is the last thing on their minds.  Many of these situations are examples from my own life.

Attractive Lips

we lip read. 

Why you should tell them:  When we lip read, we stare intently at other people’s lips and eyes, or stand a little too close to get a good look at their tongues. Your body language may be misinterpreted as flirtatious, and it may be confusing people.  If the other person isn’t attracted to you, your romantic overtures could seem creepy.  On the other hand, if they respond in kind, it can be embarrassing for both of you.  By being proactive in disclosing your hearing loss and need to lip read, you can avoid those awkward times when lipreading is mistaken for sexual attraction.

We appear to ignore people. 

Why you should tell them: They have no clue why you sometimes give them the cold shoulder, and it makes you seem moody.  If your hearing aid or cochlear implant has a noise cancelling program that minimizes noise behind you, while maximizing sound in front of you, it is possible that your inconsistency in hearing may lead them to believe you’re ignoring them.  They don’t understand why you answer when they talk to your back sometimes and not other times. Also, no one remembers you hear better on your left or right side.  All they know is that you sometimes ignore them.  By disclosing your hearing loss, they may not take it personally.

We don’t laugh at jokes.

Many people tend to drop their voices at the punch line.  Puns can be exceptionally confusing to people with hearing loss and to lip readers.

Why you should tell them:  You seem to have no sense of humor, or worse, you seem slow on the uptake.  

dead cactus
.©2010 Andres R. Alonso / WUSTL.

We laugh at the wrong times.  

Someone says their cat just died.  You hear (or lip read) their cactus died.  You laugh and say, “I KNEW that would happen.”

Why you should tell them: You appear to be the most insensitive person they ever met!  It is much easier to explain that you misheard if they already know you have hearing loss.

cat

We use sarcasm accidentally.

Say someone doesn’t thank you after you’ve performed a favor of some kind.  You hear them mumble something as they’re walking away, and you assume they thanked you because that would be the normal thing to say.  YOU say, “You’re welcome.”  But it turns out, they didn’t thank-you; they said something else.  Now you’ve made them feel impolite for not thanking you, so they turn around, apologize and thank you.

Why you should tell them: You’ve implied they were rude. You seem petty and sarcastic.  However, if you’ve already disclosed your hearing loss previously, you can explain you behavior as a simple misunderstanding, because you didn’t hear.

We avoid the telephone.

Luckily many people like to text, but some still love to talk on the phone.

Why you should tell them: They think you’re avoiding them when you never pick up, especially if you gave them the cold shoulder recently, or didn’t laugh at their joke.  When disclosing your hearing loss, you can let them know that you prefer texts or emails.

We answer the wrong questions.

Coke

(A mostly true conversation.)

Him: “Have you seen my coat?” 

Me: “Last I saw, it was in the closet.”

Him: “WHAT!?! Why would my COKE be in the closet?”

Me: “I saw you put it there yesterday.”

Him: “What are you talking about?  I just opened it.”

Me: “And you didn’t see it hanging in there next to mine?”

Him: “WHAT?!?”

Me: “It’s right next to my BLUE one.”

Him: “My coke ?!?!?!”

blue coat

Why you should tell them:  They’re wondering if you’re crazy.  It’s much easier to explain you thought he said, “coat,” not “Coke” if you’ve previously disclosed your hearing loss.

We accidentally repeat a point someone else just made in a meeting, OR we ask the same question someone else just asked.

Does this ever happen to you? You ask a question and the response makes it clear that the question you asked was already asked and answered by someone else?   “Thank you, Kim, as I just explained to Michael moments ago, . . . “   Embarrassing, right?

Why you should tell them:  You seem inattentive or possibly daft.  By disclosing your hearing loss, the assumption will be that you didn’t hear, not that you weren’t paying attention.

I don’t know about you, but I would rather people know that I can’t hear than having them think I am bad-tempered, insensitive or daft.

As hard as it seems at first, disclosing your hearing loss will make your life easier, because after you tell people, they will cut you some slack if you need a repeat.  You’ll be off the hook when you avoid the phone.  No one will get upset when you don’t say hello.  They will understand you misheard if you laugh about their cat dying.  They will know to exercise a bit of tolerance where you’re concerned.

Have any of these things ever happened to you?  How did you deal with it?

To read more about the benefits of disclosing your hearing loss, go to Michele Linder’s post, Yin Meets Yang

 

 

 

 

Advocacy in the New Political Landscape: A SWC 2017 Convention Workshop

by Chelle Wyatt

Our 2017 SayWhatClub Convention was held last August in Savannah, GA. We lucked out with better than average weather (not as hot as usual).  It rained some but that did not dampen anyone’s spirits! Daily group outings were available which included trolley tours of the city, a haunted pub walking tour, Mrs Wilkes Family Dining Room, the Olde Pink House (so many wonderful southern dishes at both places) and even a trolley/bus to take us to Tybee Island. There’s rarely a dull moment at our conventions.

John Waldo’s Workshop, “Advocacy in a new political landscape”

Because of possible heat and humidity, we held our workshops in the afternoon giving our attendees the cooler parts of the day to explore Savannah; the mornings and evenings and it worked out great. One workshop I’d like to highlight today was one given by John Waldo, an attorney whose practice focuses on hearing loss issues.  He was our keynote speaker in 2012 at the Salt Lake City, UT SWC convention and he gave us a workshop at 2016’s convention in Boise, ID. While preparing the convention in Boise, we were having a hard time getting captions for a play at the Shakespeare Festival we wanted to attend. John was kind enough to write a letter to the Festival and we had captions!

listen tech logo

Listen Technologies sponsored John’s workshop, Advocacy in a New Political Landscape. “Listen Technologies brings power and clarity to the sounds that enrich people’s lives—with solutions that overcome the challenges of noise, distance, clashing conversations, and hearing loss to deliver precise and personalized audio in any setting or environment.” If you take a look at Listen Tech’s website you’ll find their support section is all about education, advocacy and support for those with hearing loss. They have been a great sponsor for the SayWhatClub conventions since 2012 and they are also dedicated to helping hearing loss support groups in the Salt Lake City area. Thank you Listen Tech for sponsoring John’s workshop in Savannah.

John 2
Our workshops are captioned and have a hearing loop.

 

Current Political Environment for hard of hearing

How does the current political environment affect those of us who are hard of hearing and deaf? The ADA (Americans with Disabilities Act) was created 26 years ago, intended to be a charter of rights for people with disabilities. John said, “The underlying idea was to get government agencies and places of public accommodation, which are essentially private businesses, open to the public. The idea was to create a situation where those people brought folks with disabilities into their businesses and made what they were doing accessible to everybody.”

Specific needs were worked out people with mobility issues but all they could do for people with sensory issues was map out generalities, nothing specific. “It requires in places of public accommodation to provide effective communication, unless doing so would be an undue burden.  It requires opportunities to participate that are equal to everybody else ‑‑ unless doing all this would bring about a fundamental alteration of what they’re doing.”

Federal agencies, courts and sometimes legislature decide what our rights are, however that can change as the government changes. During election years things can change a little or a lot, this year there were more dramatic changes. This workshop reflects the changes that affect people with hearing loss.

Successes in advocacy

Last year the Department of Justice adopted regulations on movie captioning which requires all indoor movie theaters to convert to digital format and have captioning devices available by June 2, 2018. If they don’t have devices available, contact someone about it or let John know. The new regulations will not require open captioned movies under any circumstance which is a shame. John and others have argued with the Department of Justice on how much better open captioned movies are but they don’t understand that yet.

The second issue with the captioning/digital regulation is they made it only applicable to movie theaters; not museums, amusement parks or anything that shows movies that isn’t the main part of their business. John is afraid that museums and such will not caption their movies now, another shame. In the end, “we are happy with what we got but we don’t love it.”

Future Possibilities in Advocacy

What didn’t happen this past year? When the ADA was created in 1990, the internet didn’t exist. The Obama administration thought the internet should included in accommodations while not a public space in the traditional sense, it serves the public at large so captioning should be available on website. They proposed captioning on state and local government websites, going so far as to have people respond to 123 questions about captioning and blind accommodations.  Those propositions were not picked up by the current administration and put into a new “inactive” category. This is both good and bad, we won’t see anything happening in the next four or so years but then again, they aren’t taking it apart either. Unfortunately, texting 911 fell into this category also, which would have brought us into the 21st century.  

Taking it to the courts

Private lawsuits might amount to better laws in the future. Three years ago a case was filed in Philadelphia by a Deaf-Blind man who wanted a tactile interpreter for a movie. They theater so no, the ADA doesn’t require that of us so we aren’t going to do that. The Department of Justice said they were wrong and had to provide effective communication unless it causes an undue burden. That case went up on appeal and is still pending. John checks on this case a couple of times a week because it has potential to help those of us who are Deaf and Hard of Hearing. *** It looks like this case has been settled since the SWC convention, here’s an article: http://www.foxnews.com/us/2017/10/07/deaf-blind-patrons-must-be-able-to-go-to-movies-too-court-says.html

To further demonstrate how things are flipping around, there’s another lawsuit against Coca-Cola saying their vending machines are not blind accessible. The lower court and court of appeals tossed it out saying vending machines are not a public accommodation. The Department of Justice at first said yes they are but with the new administration they have reversed positions and said no they are not.  

On ADA enforcement, nothing has changed so far. The enforces with the Civil Right and Disability Divisions are still hard at work with accessibility, some good settlements are coming out. There is no “benign neglect”, no harmful changes yet.

There hasn’t been a whole lot of activity in the courts so far this year. They’ve had good luck with websites to stores that are places of public accommodation such as a grocery store. Where business is strictly internet related such as Netflix, some courts say yes and some say no. There was a case against Domino’s Pizza with a blind man saying their website did not accommodate vision loss. Domino’s said they weren’t required by the federal government to comply; no regulation, no liability and a judge agreed with Domino’s and it’s up in the appeals court now. (John calls these ‘zombie’ arguments because they keep getting shot down but keep coming back.) However in another similar case a judge ruled that yes they had to provide accommodations.

Another ‘zombie’ case has to do with inventory, the ADA says you must be accessible but you don’t have to change your inventory. Cinemark used this strategy saying movies were their inventory and asking for accommodations meant changing their inventory so asking for accommodations meant changing their inventory.  Cinemark lost the case. In another inventory case, a man with mobility issues needed a temporary hand control added to the steering wheel to be able to test drive a car. The car company said no, that’s changing our inventory. It went to court and in July the court ruled that’s not what changing inventory is about, the ADA is saying you don’t have to stop selling cars because it’s not accessible to everyone. What you need to do is temporarily add the modification to sell the car.

“Well, that sort of blows to Smithereens this idea about inventory, because it seemed to me that installing hand controls in a car is exactly the same sort of thing as providing captions for a movie or tactile interpreters for a movie. You are not changing inventory overall; you are just asking them to make a temporary modification on this particular occasion and this particular item. So that was an absolutely wonderful case. And if we have time to get to it, I will talk to you about some of the things that we anticipate we can do with that case,” John told those of us at the convention.

John Waldo 1

Impact of Nuisance Lawsuits on Hearing Loss Advocacy

Congress also has the potential to cause us problems. Prior to the con, many of us had heard about the ADA Notification act which revolves around nuisance ADA lawsuits, hundreds of lawsuits mostly on mobility issues. “I don’t mean to pick on mobility people here. The problem is they have the reverse of what we have with effective communication. There are no regulations telling you exactly what to do to create effective communication, but with mobility access there are tons and tons of extraordinarily specific regulations. The flip side of that is that even minor deviations from those regulations can arguably be a violation and bring about a lawsuit. These are the sort of nuisance lawsuits. Apparently there are people who will go out and look through parking lots and find those disability placards, the ones that say disability parking only, and they will say, they are in violation because the sign is the wrong height. Or the type isn’t exactly the right size. Or they don’t have exactly the correct amount of the fine if you park in this space.

I think most of us would admit that these are things that ought to be fix able quite easily. So the ADA notification act requires before filing a lawsuit for the ADA violation, you have to give people notice what of the problem is and an opportunity to fix it.”

The business community’s side of it is there are all these lawsuits that could be fixed easily if you just tell us about it. The other side of it is good to be able to enforce the laws with private action. John feels it doesn’t really affect our ‘effective communication’ and businesses should be given the opportunity to fix issues before going to court.

Another bill that sailed through the House of Representatives was one on class action lawsuits. Businesses don’t like that thousands of people can pool their resources and sue companies such as banks and cable that sneak a lot of added little charges into the bill. So the House of Reps came up with a ‘conflict of interest’ rule to get rid of these kinds of lawsuits. To keep lawyers from making their money by having relatives file lawsuits, the new bill requires class action lawsuits to disclose relationships with plaintiffs or whether or no lawyer represented them before. This makes sense for money-making lawsuits but none for disability rights violations, said John. This would affect advocacy organizations who are suing for accessibility, not money. At the time of the con, this bill was stalled out at the Senate.

The next one is the anti-SLAPP (Strategic Lawsuit Against Public Participation measure introduced in 2015. To explain this John used this example: “The classic SLAPP lawsuit was filed by the developer against, say, the Sierra Club. The Sierra Club would come in and say, no, your shopping center is going to poison the stream that the community relies on with water. The developer would turn around and say we will sue you for defamation and X amount of economic advantage. I won’t win because you are exercising your first amendment rights, but you will have to spend money and time and hire attorneys, so that will be a lesson to you. It will cost you a lot of money to be able to get out there and participate in this public process.”

Federal Anit-SLAPP Lawsuits

This affects us because asking for captions would fall into Anti-SLAPP. This would affect ALDA (Association of Late-Deafened Adults) which is a small group with no money, who has successfully advocated for captions in the past. This law could require them to pay the other side’s attorney fees up front. As of now, these fees can be avoided because the action is filed under the ADA and state laws don’t apply. However if there’s a federal Anti-SLAPP statute that would apply to the ADA and subject us to potential damages. It could tie up cases for years making it expensive and then lawyers who work for free doing this sort of thing, might have to charge to pursue captioning. Luckily the federal Anti-SLAPP measure expired in 2016 and has not be reintroduced.

John talked about another lawsuit he briefed us at the  Boise convention in 2016 against the Fabulous Fox Theater in Saint Louis. The Fox theater claims to be one of largest theaters but doesn’t think they have to provide captioning so they are suing them. The Fox is now exploring something other than captions beside the stage because they don’t want to block out seats. Instead they are looking into providing captioning via handheld devices…and if there’s a lot of action we “become a bobble head” looking down to read and trying to watch the stage. John and his client agree this is not adequate. Not only that but the screen is bright and attracts negative attention. The Fox is also fighting captioning more than one show per performance, they are saying once is enough and “we are saying that isn’t enough.” They are claiming undue burden. The case has yet to be decided but John is confident that it will come out in their favor in the end.

He talked about another experience he and his wife had in New York on Broadway with handheld devices which didn’t scroll in time with the dialog. “Broadway can learn from live theater. We can come up with some better way to do this, some better way of creating captions for every seat, for every show, something we don’t have to hold in our hand. So we put together what I call an invitation, a letter, to some of the bigger theater owners that said, we would really like to sit down with you and talk about a better way of doing this and we sent that letter out on the 10th of November. And then I kid you not, one of my friends in New York, that I was working with on this, gets an email from the Schubert group saying, guess what? We figured it out. We realize that there has to be a better way of doing things with live theater. We would love to sit down and work with you on how to make this happen.”

“What we really want is to live a spontaneous life. We want to be able to plan at the last minute, do things spontaneously, just like everyone else.” – Richard Pimental

John quoted the SWC convention keynote speaker in Boise, Richard Pimental, “What we really want is the ability to live a spontaneous life. We want to be able to plan at the last-minute, do things spontaneously, just like everyone else.”  Broadway is willing to work with captioning, we can try different ideas to see if we can bring about that spontaneity for theater.

That National Association of the Deaf (NAD) and ALDA are working to get sporting venues captioned. While attending the game, it isn’t just about the game which you get on TV, there are announcements, presentations and interviews on the field. It’s nice to have those captioned too.

He’s also working on theaters maintaining their captioning devices so we don’t have to put up with devices that are charged or captioning properly.

In the future, if the Department of Justice is not going to be our warrior friend then we will all have to come together to make things happen. “One final thought I would like to leave you with is a cool thing about the Americans with Disabilities Act, it is a federal law, but it specifically says that it does not control over state or local levels that provide greater protection for people with disabilities. Some state laws do. Some local laws do.

So if you don’t like the law as it’s written, the ADA as it’s written, try going to your city council and see if they will pass an ordinance in your city that will actually make life better. I mean, in Portland, Oregon, sometime within the past year, the City Council passed a law that saidan ordinance that said all televisions in public places have to have their captions on. So this can be done.”