Interviews Archives - SayWhatClub

Interview with Cheri Perazzoli/Let’s Loop Seattle, Part II

Posted on March 16, 2018March 29, 2018 by swc-kward

By Kim Ward

Cheri Perazzoli, Let’s Loop Seattle, is the Director of Advocacy for HLA- Washington state. This is Part II of a three part interview on advocacy strategies she employs. If you missed part I read here.

Previously Cheri discussed how she convinced Town Hall Seattle to install a hearing loop. In this segment she will answer more questions about her involvement with the Seattle Repertory Theater and Seattle-King County Metro’s library systems. Additionally, she discusses her strategy for dealing with resistance.

K: In our last interview, I asked you to describe some of your greatest successes in hearing loop advocacy, and you talked about Town Hall. I understand the Seattle Rep is also a win that is dear to your heart. How did you work with the Rep to make the loop happen?

Seattle Rep Theater/Let’s Loop Seattle!

Build your Community; Timing is Everything

C: Since our arrival in the Pacific Northwest, Lou and I have been patrons of the Seattle arts scene. As season subscribers, we’ve engaged with front-of-the-house staff and key folks in the arts community. Upon seeing me check out an assistive listening device at the Paramount, one of my personal friends asked the Seattle Rep to install a similar system. This was years ago. When the Rep leaders learned customers were frustrated with their current assistive listening system, my friend suggested the Rep install a hearing loop, and that got the conversation started.

This picture, taken from the Let's Loop Seattle site, shows signage at the ticket counter indicating the presence of the hearing loop at the Seattle Repertory Theater — Signage at the ticket counter indicating the presence of the hearing loop at the Seattle Repertory Theater.

K: So you are saying that the Seattle Rep saw problems with their system, but they didn’t know what to do about it until your friend suggested they install a hearing loop?

C: Well, kind of.

We’ve found timing is key. If a new building is being built or if a venue is undergoing a remodel or upgrade, you can sometimes work with planners to include a hearing loop. Here’s where existing ADA law and local ordinances can work to your advantage. The 2010 standards for assistive listening were altered to require that 25% of all assistive listening system receivers be hearing aid compatible.

Focus on hearing assistance

Since the people who need hearing assistance the most are those of us who wear hearing aids and cochlear implants, it makes the most sense to install a system that is likely to be used, and which requires much less maintenance, staff service and storage on the part of the venue. The telecoil in the hearing aid or cochlear implant enables the patron’s personal hearing device to double as an assistive listening receiver. What could be easier than simply changing a program on your own device when you need to hear better?

Budgets

Budgets are always a challenge, so requesting that funding be allocated for a hearing loop or other hearing access is the first step. Suggesting ways that a venue can fund (or should fund) is also helpful.

Asking for communication access to be included (or for access more broadly) is part of any organization’s strategic plan that sets the stage. For example, the Seattle City Council passed a resolution (31641) in 2015 stating they intended to improve hearing accommodations. We point to that and say, “Remember?”

With the Rep, it was a matter of timing and their commitment to build community. Like many theaters, the Rep has a lot of volunteers who might not be aware of Assistive Listening System options. And sometimes front line staff or volunteers hear about issues. That can take a while to reach decision-makers.

An all-inclusive staff retreat revealed issues with the Seattle Rep system. Once the Rep found out though, they were wonderful to work with. They even held a fundraiser to pay for the loop. Not only did they install the technology, they continue to test the equipment before each show. And they market the accessibility. Lou and I are subscribers. Before every show, we get an email and the info about the loop is included.

K: That’s so important. A lot of times when I want to know what kind of access a venue offers, if any, I have to search through several web pages to find that information.

C: Jeff Herman, the Rep’s Executive Director, was honored with the Northwest Access Fund’s Best Practices Award in 2015. The Rep is committed to accessibility and includes this in their marketing and publication materials.

Libraries

K: Cheri, I wanted to ask you about about libraries in the Seattle-metro area. Information and circulation desks in libraries can be super challenging for people with hearing loss because there’s all this ambient noise from computers, printers, babies crying, and sometimes loud street noise at some of the busier city libraries. Most people use their “quiet voices” in the library to the point of barely whispering, which as you know decreases the ability to lipread, as well. (Whispering requires less mouth movement.) KCLS has always been very good about accommodating me as an employee. But, I didn’t know about the loop until you installed it at my branch in 2012. I like to think I’m well informed about all of the access options available. That a technology existed that could help both me and our patrons surprised me. And to think I never heard about it!

Reading into your earlier comments, it sounds like you face three challenges. 1. Educating people with hearing loss about what is available. 2. Convincing vendors to install it, and 3. Getting the word out that it’s there. Because — even after venues install the technology, their patrons may not know without adequate signage and some kind of promotion.

C: Right. Kim, when we launched Let’s Loop Seattle in April 2012, we reached out to libraries, and they sent their HR and facilities folks. We’ve found libraries to be receptive to loops, including KCLS, Burlington, and Bainbridge Island.

K: The Seattle-metro area is a diverse region, and libraries are aware of the positive impact they can have on neighborhood communities by reaching out to the various populations. The loop at KCLS turned out to be a lifesaver for me. Best of all, it’s extremely convenient to use. It’s always on. My colleagues are hardly aware of it. They don’t have to turn it on or check its batteries or speak into a microphone or anything. So, it’s very easy to use and offers access to anyone who has hearing loss and t-coil capability.

Holistic approach

C: One of the things I was not prepared for, and there were many, was that some of the places that already had some sort of communication support were the ones most interested in making improvements!

K: Yes that is surprising.

C: There were and there still are so many places that do not have anything in place to help with communication access. My focus has been on getting more places in the hearing loop, rather than upgrading or replacing existing technology.

K: I would love it if we could get more access at places like Jazz Alley and The Triple Door. I don’t know that anyone has ever approached them. I haven’t. Though Seattle is ahead of the curve when it comes to deaf access, there are so many venues that still offer nothing. So I wanted to ask what do you do when you are denied access?

Determining need

C: I’ve never filed a formal complaint, but that doesn’t mean that I won’t. Whenever I’m called to talk to a venue about communication support, I always try to find out exactly why. Is there a patron or group of residents making the request? What is the patron’s preference? What are they offering now? Priority seating, a script? If there’s an assistive listening system, I ask why they want to replace it. This is really important in live theater where actors are not traditionally miked. In having the equipment, the theater may have checked the compliance box, but they have not addressed cultural changes to make the access effective.

With any assistive listening transmission type, the outcome is directly related to the quality of the audio and microphone arrangement. These aspects must be reviewed before a replacement is considered. So many times, we hear that the infrared (IR) system isn’t any good, or the loop doesn’t work well, when the problem can be traced to the original AV/mic situation. True — there are poor loops, outdated IR and inferior FM systems. But many times, inadequate performance can be traced to the human factor. Therefore, we are most adamant that all contracts for a loop system be written to specify the system be installed to meet or exceed the International Electrotechnical Commission (IEC) standard for performance.

K: How open have various venues been to looping technology compared to other types of accommodations?

C: Most venues will tell you that they want to do it, it’s just that it costs so much, or aesthetics must be addressed. They don’t want to cut the carpet. One challenge has been the lack of qualified, reputable installers. Facilities that are required to get multiple bids have often been persuaded to choose a different type of assistive listening system.

K: I am aware that publicly funded building projects are required to get several bids while using performance based standards to determine the lowest bid on comparable work. Given funding constraints and possible confusion over the various listening systems available, I can see why they might choose a less expensive option.

“It’s a great idea, but it costs so much.”

C: I heard this so often. So I went on a search to find some grant funding. In 4Culture here in King County, we found a wonderful grant source for the arts community. Applications must be completed, and 4Culture makes all the decisions.

Not all vendors who specialize in serving the hard-of-hearing with assistive listening technology install loops. Mainstream AV installers are not incentivized to learn the specifics of loop installation. It’s labor intensive, and it requires training, experience — and math and physics to make it all come together. Often these vendors simply want to sell their specific product, and they don’t really care about the user experience. Thus, many more places than I would like to count have installed a different assistive listening system. Still, I have to count that as a success of sorts . . . It’s disappointing, but I mainly feel bad for the advocate who’s driving the install. Consumers prefer hearing loops almost nine out of ten times. And of course, user-friendly loops are the most likely to get used.

K: When you find a public venue that doesn’t offer access to the deaf and hard-of-hearing, what is your normal plan of attack if you have one?

start the conversation

C: Send an email/letter to start the conversation.

For a specific event, I start with an email to the event planner, or the person noted to contact for additional information, explaining that I’m hard-of-hearing (HOH), and I do not use American Sign Language (ASL). I reference our numbers to indicate that while I am making the request, that I am not alone. Next, I ask what kind of hearing accommodations are put in place. This is a necessary step because it indicates to them any forgotten ADA considerations as well as the deaf/HOH community’s expectations. Also, the question may flush out an assistive listening system that is locked away, that no one knows about. Or arrangements may have been made. Yet, staff are unaware, or they may not have publicized the access.

Depending on the situation, I may wait for a response, or I may expand to describe how I hear in public venues such as theirs. I give examples and describe the process and details of using hearing assistive technology, and I also request CART/captions, (where appropriate). I state how those accommodations will help me participate. “As each person speaks into the microphone, the loop enables me to hear the speaker’s voice clearly, and CART allows me to catch any dialogue I may have missed.”

For a specific venue. I send something similar, but, depending on the venue, I may reference a program I attended and liked, that I could not hear. I explain how much better it would be if I could understand and participate like others. Or when a venue is in the process of a remodel, I do something similar. I always point to other venues and programs that are accessible.

K: How often do venues flatly refuse to install a loop and what do you do when that happens?

Pinpoint the Excuse

C: Yes, it does happen occasionally. I try to pinpoint the excuse, and I hear a lot of them.

We have no plans for hearing assist.
The venue doesn’t have an assistive listening system.
We aren’t planning to use a PA.
It costs too much.
We don’t have enough time.
We are just a non-profit..
Okay, we’ll get an interpreter. (!!???)
We don’t want to spend the money.
Too complicated.
Nobody else has it.
No one has ever asked or complained; we don’t want to.
Our AV guy says his system (insert FM/IR ) is better.
The hearing resource center recommends FM or IR.
We don’t want to remove the carpet.
It won’t look good; we don’t like it.
Mainstream AV are not incentivized and do not have training and pass along false information: “You have to be really careful if you install loops.”: “Loops have too many problems.”: “It’s too expensive.”
We don’t want to.

K: It sounds like you’ve heard every excuse possible.

C: Right. Once you track down and identify the real excuse, it’s easier to address. When places realize the law requires communication access, most install an assistive listening system. But sometimes they install something else, instead of the loop. They may look for the cheapest system available. Sometimes local resource experts and existing venue contacts persuade them to try something different. They don’t realize that others have their own agendas, or are motivated by profit. Many times, you don’t find out until it’s too late. Folks who do not use the technology, or who have not experienced the hassles of distributing and maintaining equipment really don’t understand the user experience. They make the decisions on our behalf and that’s just wrong.

clarify the need

Often times, people contact me after asking a venue for accommodations for months, even years. I try to find out from that person exactly the listening situation they are trying to remedy, the problem, exactly what they want, and why. That way I can better work with the person and the venue to come to an agreement that will best meet everyone’s needs.

I use ADA lingo and reference links. I provide testimonials, and I connect folks to people in similar venues. We maintain a list of looped theaters — both local and national. We have a list of looped municipal buildings, too.

Education is Key:

Incorporate the terms: auxiliary aids and services and alternate formats, required by law….and reference similar locations, venues, or programs that are accessible. Reference ADA resources. I point folks to my website where I have a listing of looped venues and information about how to plan an accessible meeting, Communication Access Real-time Translation (CART) resources etc.

Resistance:

I don’t think I’ve ever been denied CART. Once, I arrived to see the reader board in place, but the organization didn’t seem to understand it was their responsibility to arrange the Cart reporter! I have built relationships with my local CART providers, CCAC and others. I’ve walked folks (myself included!) through how to set up remote CART. I’ve had venues and CART providers who were unable to deliver as promised. At times, I’ve had to be graciously persistent, to the point of referencing the legal obligation, but I’ve never had an outright denial for CART.

K: I have been denied CART, but I was persistent and got what I wanted in the end. It was a case of an event planner not understanding ADA laws. Actually, I filed a Civil Rights complaint. I was polite about it, and sent information. After he refused, I did let him know that I would be filing a complaint because he told me flat out the venue wouldn’t pay for CART, and that he had no intention of offering any type of access at all.

Things changed in my favor very quickly after I filed. It turned out the event planner misrepresented the venue’s policy on providing access. The venue sent a nice message within a day and assigned someone else to work with me on access for that event. If I had to do it over again, I would ask to speak to a supervisor before filing — which I think should be a last ditch effort. It was a learning experience for me and the event planner, I think.

C: Good for you! Unfortunately, lack of education on the part of event planners is far too common. Loops and HAT are a completely different story altogether. Installing, implementing and utilizing HAT requires not only an investment, it requires others to change their behavior to accommodate your hearing loss.

Captions versus Loops

Seahawks fans break sound record - Elaine Thompson/AP — Captioning access is nice at CenturyLink field, especially when the Seahawks break sound records causing small earthquakes.

K: Right — There are pros and cons to both CART/captioning and Loops/HAT. I can’t see the hearing loop working in a football stadium, for example.

However, after it is installed, nothing else needs arranging. That means deaf/HOH people can attend every performance, not just the one captioned performance offered during a two week period. The flexibility is nice, especially for working people who may not be excited about commuting to Seattle on a rainy Thursday night to see the one captioned performance offered. You can pick any performance and going to a play can be more spontaneous.

However, all of the Seahawks games have captions, and I love the captioning at CenturyLink and Safeco fields though. One advantage of captioning is that people who don’t use listening devices may also read the captions. That includes signing Deaf, as well as people who are HOH who don’t benefit from hearing devices, and those who speak English as a second language.

C: Kim, did you know the Michigan State basketball stadium is looped?

K: No — Really?? That must have been a huge undertaking! I’m not sure it would work for me at CenturyLink field. I actually take my devices off there. The noise is deafening! But I could see it in a basketball or hockey stadium. A very large area to loop, though!

C: Yes, a perfectly designed, hearing loop, one that meets IEC standards and that’s properly integrated with appropriate AV can benefit a great many folks in the hard of hearing community at each and every performance, each and every day!

K: Cheri, thanks again for this interview. I have learned a lot about the business aspect of offering access, and the many issues vendors have to deal with when considering ADA laws, funding and city ordinances. It helps to know their viewpoint, and that “no” doesn’t necessarily mean “never.” Things keep getting better and better all the time for those with hearing loss, thanks to people like you. In our next interview, I want to talk more about some of the bills you and others in HLA-WA have been advocating in Washington state. I’m very excited about what’s happening here, and I hope other states follow suit.

If you are interested in finding out if there is a looping organization in your area, Cheri has listed other loop orgs on her website here.

Interview with Cheri Perazzoli, Advocacy Director Washington State

Posted on March 13, 2018March 26, 2018 by swc-kward

By Kim Ward

Cheri Perzzoli, Director of Advocacy — Cheri Perazzoli introducing Town Halls loop system.

This is an interview with Cheri Perazzoli, Director of Advocacy for HLAA – Washington, and founder of Let’s Loop Seattle, which is part of the HLAA’s bigger Get in the Hearing Loop. Cheri is a relentless advocate for the installation of hearing loop systems in the state of Washington, especially in the Puget Sound region. Additionally she has been working with other HLAA members pushing for changes in Washington State laws to better serve people with hearing loss. If you live in Washington State, you can read more on Loop Seattle’s web page about the bills recently introduced to Washington State’s Senate– SB 5177, SB 5178, SB 5179 and HB 2856. Be sure to write your legislators in support of these bills.

I first met Cheri when she came to my library branch to outfit my desk with a hearing loop system back in 2011. This was quite a surprise at the time, as I had no idea Cheri had spoken to staff at KCLS, or that they would be installing a loop system at my branch.

The loop works with my hearing devices to cut down on background noise, and it increases clarity in speech. The best part about the loop system is that it is two-way: any library patron who wears a hearing device with a t-coil also benefits from the loop.

If you don’t know what a hearing loop is, you can watch this video created by OTOjOY.

Those of you who have gone to a SWC Convention in the past have experienced induction loop technology first hand, and you know how wonderful it is. I was thrilled when Cheri agreed to be interviewed for the SWC blog. She has been an outspoken advocate on our Advocacy List, and she has a lot of good information to share.

Interview

K: How was your hearing loss discovered and how long have you worn hearing devices?

C: Second grade, following a measles epidemic, my first-grade teacher, Mrs. Cunningham, who was also my second-grade teacher noticed. How? I’m unsure. Looking back, I’d become great friends with Mark, the boy who sat behind me. I probably asked him everything I didn’t hear. Each afternoon, I told my teacher I didn’t feel well and asked to go home. I wasn’t unhappy or sick. I simply wanted to go home. Looking back, I was probably bored and most likely exhausted from active listening. Also, my pupils were always dilated. Thanks to this article by UW’s Dr. Matthew Winn, we know now large pupils are a sign of active listening.

K: Interesting. I didn’t know that about the pupils. People used to comment on the size of my pupils all the time. Cheri, was there anyone in your early life who mentored you, or who inspired you to be more assertive about your needs?

C: Teachers were mostly supportive, and always instructed me to speak up when I couldn’t hear. But, that itself, was a problem. I usually only spoke up when I had made a blunder or error because I misheard or was unable to understand clearly.

K: Classroom situations can be really challenging. Even with hearing aids you don’t hear the questions coming from other parts of the room. If the teacher doesn’t repeat the question you’re left to guess what she’s talking about, especially if her answer is vague– like “Yes that’s right.” So your teachers were supportive?

C: My second-grade teacher made it clear that I needed to sit close to the front. After that year, she became principal, thus her advocacy for me extended throughout elementary school, even school activities. I always sat in the front at almost every school or church event. And, yes, I sometimes sat alone without any friends or family. In those days, there wasn’t an issue securing “priority” seating for most programs I attended.

K: So, it sounds like you learned to advocate for yourself early, and your teacher reinforced your self-advocacy by finding ways to include you. How did you get past that “good girls don’t make waves” mentality?

C: I was given an assigned seat along with a group of three “bad boys.” While the other students rotated seats, we were stuck with each other all year, so we became close friends. My hearing loss wasn’t obvious in small groups or one-on-one. Distance and competing noise were the offenders. While these guys didn’t mentor or advocate for me, they did stick up for me on the playground or at the lunch table. And as we grew older, these boys became the popular guys, which helped me stay connected in high school.

I’ve been blessed to have close friends who have been instrumental in keeping me connected in my journey. Michele frequently repeats for me. She’ll look over and say ‘did you hear what she said? And Suzi casually calls out “Cheri gets shotgun,” because she knows I hear best from the front seat. My college roommate assured me no one would notice my hearing aids and convinced me it was essential to wear my hair up, to look the part of my Halloween costume. Friends knew I wore hearing aids, but I hated the way they looked. I still do. (The only aids I liked were my pretty blue Phonak aids with blue molds.)

K: My favorites were zebra print Phonaks. I really dislike medical beige. I don’t recall hearing aids coming out in designer colors until the 1990s, but I could be wrong.

C: The aids I have today are boring grey. These state of the art, super power Resounds are the only ones I could get that “communicate with each other” and connect directly with the iPhone. (Yes, I can decorate, but I haven’t.)

K: Right, my current devices are beige, but I chose them for their features, not their color options, which in my case doesn’t matter since my hair covers them.

Hearing Loops

Hearing Assistive Technology (HAT) Sennheiser Set

K: Switching gears. When did you first become aware of hearing loops?

C: 2008. But I did know about Hearing Assistive Technology (HAT). I had a Sennheiser infrared TV headset before the Paramount remodel where the same devices were introduced for the HOH public.

K: When did you become actively involved in advocacy? And why?

C: 2011. I like to say advocacy on behalf of others. In some cases, it’s easier to advocate on behalf of an organization, rather than just for yourself.

. . . I think that for me, I just don’t have anything to lose. What I mean by that, is because I’m “retired” I don’t have to deal with the day to day frustrations that’s needed to secure accommodations and to garner the support of colleagues to change their behavior for me to participate. I can choose who I hang out with, who I work with, thus, if these folks aren’t accommodating, I find folks who are.

It all began with a vision: a vision of hearing-friendly Seattle. I wanted to duplicate and expand on what I had experienced in Dublin.

After attending my first HLAA convention in D.C (held in conjunction with the 2^nd international loop conference), I returned to Seattle as a woman on a mission. I knew I had to step up and be a voice for my people. I was inspired from the moment I walked into my first workshop: The Looping of America Begins with You, followed by John Waldo’s, Update on Movie Captioning; then David Myer’s keynote speech. David’s UK hearing loop experience had mirrored mine. He had pretty much looped his entire town, Holland, Michigan. By the time I was on the plane home, I had connected with both John and David, and there was no turning back.

K: Describe some of your greatest successes in hearing loop advocacy. I know about a couple of them — Town Hall and Seattle Repertory Theater. How did you convince them to add hearing loops to their auditoriums? What was your strategy?

C: Strategy- I think about hearing access every day.

Passion
Patience
Persistence
People- network, find a buddy, build a coalition — and remember to say thank you, often.
Repeat

town hall

C: Seattle was a priority from the beginning. I targeted Town Hall for the rich diversity of programs offered, their affordability (most events are under $5, and many are free), the closeness to senior communities, and TH’s dominance of the civic, scientific, and cultural arts scene. TH rents the venue to many non-profit organizations that should budget for accessibility—but they often don’t.

Our big break with Town Hall came via Katherine Bouton. Katherine had asked if she might she speak at a HLAA-WA chapter meeting while she was in town promoting her book, Shouting Won’t Help. I saw this as a dream come true. I saw this as a way to reach an audience much larger than our chapter:

“Make hearing loss visible; deliver the audience.”

That’s when Weir Harmon, Executive Director, realized that we were an audience of many—yet, still we were excluded. Town Hall was sold on the idea, but they wanted to delay till the remodel, which is just now underway. Fortunately, Town Hall agreed to a multi phased installation.

“Tend to your venue.”

I got this phrase from my HLAA colleague Peggy Ellersten. It’s so important to reach out frequently to let the venue know how much you appreciate the accessibility, whether it’s a loop, captions, or priority seating. It’s also important to let them know when something isn’t working and help them correct the problem.

K: That is excellent advice. Thanks.

This is the first part of a three-part series. Many cities in the US and Europe have a Looping Advocacy division. I mentioned in a previous blog about the loop finder app at http://www.loopfinder.com Cheri’s website includes a list of US Loop Advocacy organizations. To find out if there is one in your area, go here.

An Interview With Lip Reading Mom

Posted on April 10, 2013March 15, 2018 by Chelle

The SayWhatClub conducted an interview with lip reading mom, Shanna Groves, author of two books on hearing loss. She was diagnosed with progressive hearing loss after the birth of her first child at 27 years old. In the years since, she and her husband added two more children who provide creative fodder for writing. Her books include Lip Reader and the just-released Confessions of a Lip Reading Mom. The philosophy, “One person can make a difference; it takes many people to make the difference permanent,” inspired her blog, LipreadingMom.com, which advocates for hearing loss awareness. Her pet projects are: The Lipreading Mom Captions Campaign, Show Me Your Ears, and Stop Hearing Loss Bullying. She speaks and teaches classes on hearing health, lip reading, and creative writing to people of all ages.

SWC: Can you give us a little background and how you became interested in writing?

My first foray into writing was in middle school when I joined the yearbook staff. One day while laying out a yearbook page, I learned that I had won the Outstanding English Student Award for my school. A gigantic trophy and tons of writing confidence followed. I grew up in Oklahoma and Texas and developed quite a memory for people I had met and places seen. All those memories came in handy years later when I put a magazine editing career on hold to become an aspiring novelist. It was a good thing I knew how to write because it helped channel my feelings about living with progressive hearing loss into words for others to read.

SWC: What lead you to write Confessions of a Lip Reading Mom?

Biographies and memoirs are my favorite genre of books, and I wanted to write one for years. A writing instructor once asked what was so special about my life that it warranted a book. It took eight years for my life story to materialize into Confessions of a Lip Reading Mom. I had to live life, not just write about it, in order to have a story worth telling. My book is about living with hearing loss while taking care of children, living with depression, and trying to make sense out of a progressive health issue. Writing this book was my therapy. Each chapter invites the reader on roller-coaster experiences that may surprise, educate, and inspire them.

SWC: Tell us about getting your mind in a creative mode. How do you begin your writing process?

The library is my writing muse. I go there once a week to browse the shelves for new and old books, and I check out a stack of them to read almost simultaneously until one grabs my interest—then I read that one to completion. That is how I discovered Maya Angelou’s work and the life-changing power of her creative nonfiction and memoirs. I journal and blog about what I’ve read, and other writers’ stories inspire my own words to flow onto the page. My goal when writing a book is to park myself in front of the computer to write a minimum of 20 minutes a day, five days a week. I don’t edit what I write, nor do I read the previous day’s writing, until the entire book is complete.

SWC: Many writers utilize a writing group. Where do you get constructive critiques and feedback?

When writing my first book, Lip Reader, I posted each chapter to a private blog read by a small group of writers who offered feedback and helpful suggestions. For Confessions of a Lip Reading Mom, I worked with another writer, who helped me polish each chapter before submitting to the publisher. Mostly, I’ve found writing a book to be a solitary experience.

SWC: What is Confessions of a Lip Reading Mom about?

In 2001, I became a new mom to a healthy seven-pound boy. While on maternity leave, I noticed a persistent ringing sound inside my ears and went to a doctor. The diagnosis: progressive hearing loss in both ears; cause unknown. My book spans the first six years of my life as a hard of hearing mom. How could I take care of my babies if I couldn’t hear their cries from the other room? Would I become completely deaf and, if so, how would I communicate with my children? The doorbell’s chime, the phone ringing, and my toddler’s first words were silent to my ears.

After two years of denial, I began wearing hearing aids—but I didn’t like them at first. They magnified the sounds I didn’t want to hear—temper tantrums! Eventually, I learned to navigate the uncertain waters of hearing loss with my sanity and humor barely intact. I became an online hearing loss community advocate, known as Lipreading Mom. This wasn’t my lifelong plan in the beginning, but it is something I have come to embrace now. Besides being a wife and mom, I believe my purpose on earth is to tell this story.

SWC: What was the hardest thing about writing the book?

While writing, I had to make sure that the book didn’t take up too much of my time or concentration. My children and husband needed me. Oftentimes, I had to force myself away from the computer to do the afternoon school carpool or start dinner. I experienced guilt if I wasn’t writing and guilt when I wasn’t there for my family. As moms, I’ve learned we are tougher on ourselves than anyone—and I’m still working on this whole mom guilt thing.

SWC: Now that Confessions of a Lip Reading Mom is out in bookstores, do you have any projects you’re currently working on?

I am developing a series of lesson plans on lip reading for people with hearing loss. My goal is to combine the book and blog writing with creating meaningful teaching materials to help others with hearing loss. Eventually, I would like to also develop video lesson plans to teach lip reading online and by DVD.

SWC: When you’re not writing, what do you enjoy doing?

My older kids and I are antique and flea market store enthusiasts. We like to find treasures at bargain prices. My oldest boy and I have chatted about opening our own antique store booth some day, but that’s a far-off dream!

SWC: Where can readers find your book?

Confessions of a Lip Reading Mom is available on Amazon and Amazon Kindle, as well as at CrossRiverMedia.com.

SWC: Anything else you would like to add?

Three hearing loss awareness projects I am excited about are:

Show Me Your Ears: This is my online photo gallery of people who wear cochlear implants and hearing aids, children with hearing loss, and even a few animal ears! The goal is to make hearing loss awareness a fun and visual experience. To date, there are more than 200 ‘ears’ on display at LipreadingMom.com/Show-Me-Your-Ears.

Lip reading Mom Captions Campaign:

I have partnered with the Collaboration for Communication Access via Captioning (CCAC) to develop an email campaign to encourage networks and websites to caption 100-percent of their online videos so that people who are deaf or hard of hearing have full access to them. Visit the campaign page at LipreadingMom.com/Lipreading-Mom-Captions-Campaign.

Stop Hearing Loss Bullying:

As a person with hearing loss, I have experienced teasing, name calling, and outright bullying—and I am not alone. In schools, communities, and the workplace, people with hearing loss may experience ridiculing and prejudice because of their hearing ability. This campaign has an online petition and is working on a series of videos to heighten awareness that people who can’t hear deserve respect and that hearing loss bullying is wrong. Learn more at LipreadingMom.com/Stop-Hearing-Loss-Bullying.