SayWhatClub

Interview with Cheri Perazzoli/Let’s Loop Seattle, Part II

By Kim Ward

Cheri Perazzoli, Let’s Loop Seattle, is the Director of Advocacy for HLA- Washington state. This is Part II of a three part interview on advocacy strategies she employs. If you missed part I read here.

Previously Cheri discussed how she convinced Town Hall Seattle to install a hearing loop. In this segment she will answer more questions about her involvement with the Seattle Repertory Theater and Seattle-King County Metro’s library systems. Additionally, she discusses her strategy for dealing with resistance.

K:  In our last interview, I asked you to describe some of your greatest successes in hearing loop advocacy, and you talked about Town Hall. I understand the Seattle Rep is also a win that is dear to your heart. How did you work with the Rep to make the loop happen?

Seattle Rep Theater/Let’s Loop Seattle!

Build your Community; Timing is Everything

C:  Since our arrival in the Pacific Northwest, Lou and I have been patrons of the Seattle arts scene. As season subscribers, we’ve engaged with front-of-the-house staff and key folks in the arts community. Upon seeing me check out an assistive listening device at the Paramount, one of my personal friends asked the Seattle Rep to install a similar system. This was years ago. When the Rep leaders learned customers were frustrated with their current assistive listening system, my friend suggested the Rep install a hearing loop, and that got the conversation started.

This picture, taken from the Let's Loop Seattle site, shows signage at the ticket counter indicating the presence of the hearing loop at the Seattle Repertory Theater
Signage at the ticket counter indicating the presence of the hearing loop at the Seattle Repertory Theater.

K:  So you are saying that the Seattle Rep saw problems with their system, but they didn’t know what to do about it until your friend suggested they install a hearing loop?

C:  Well, kind of. 

We’ve found timing is key. If a new building is being built or if a venue is undergoing a remodel or upgrade, you can sometimes work with planners to include a hearing loop. Here’s where existing ADA law and local ordinances can work to your advantage. The 2010 standards for assistive listening were altered to require that 25% of all assistive listening system receivers be hearing aid compatible.

Focus on hearing assistance

Since the people who need hearing assistance the most are those of us who wear hearing aids and cochlear implants, it makes the most sense to install a system that is likely to be used, and which requires much less maintenance, staff service and storage on the part of the venue. The telecoil in the hearing aid or cochlear implant enables the patron’s personal hearing device to double as an assistive listening receiver. What could be easier than simply changing a program on your own device when you need to hear better?

Budgets

Budgets are always a challenge, so requesting that funding be allocated for a hearing loop or other hearing access is the first step. Suggesting ways that a venue can fund (or should fund) is also helpful.

Asking for communication access to be included (or for access more broadly) is part of any organization’s strategic plan that sets the stage. For example, the Seattle City Council passed a resolution (31641) in 2015 stating they intended to improve hearing accommodations. We point to that and say, “Remember?”

With the Rep, it was a matter of timing and their commitment to build community. Like many theaters, the Rep has a lot of volunteers who might not be aware of Assistive Listening System options. And sometimes front line staff or volunteers hear about issues. That can take a while to reach decision-makers.

An all-inclusive staff retreat revealed issues with the Seattle Rep system. Once the Rep found out though, they were wonderful to work with. They even held a fundraiser to pay for the loop. Not only did they install the technology, they continue to test the equipment before each show. And they market the accessibility. Lou and I are subscribers. Before every show, we get an email and the info about the loop is included.

K:  That’s so important. A lot of times when I want to know what kind of access a venue offers, if any, I have to search through several web pages to find that information.

C:  Jeff Herman, the Rep’s Executive Director, was honored with the Northwest Access Fund’s Best Practices Award in 2015. The Rep is committed to accessibility and includes this in their marketing and publication materials.

Libraries

K:  Cheri, I wanted to ask you about about libraries in the Seattle-metro area. Information and circulation desks in libraries can be super challenging for people with hearing loss because there’s all this ambient noise from computers, printers, babies crying, and sometimes loud street noise at some of the busier city libraries. Most people use their “quiet voices” in the library to the point of barely whispering, which as you know decreases the ability to lipread, as well. (Whispering requires less mouth movement.) KCLS has always been very good about accommodating me as an employee. But, I didn’t know about the loop until you installed it at my branch in 2012. I like to think I’m well informed about all of the access options available. That a technology existed that could help both me and our patrons surprised me. And to think I never heard about it!

Reading into your earlier comments, it sounds like you face three challenges. 1. Educating people with hearing loss about what is available. 2. Convincing vendors to install it, and 3. Getting the word out that it’s there. Because — even after venues install the technology, their patrons may not know without adequate signage and some kind of promotion.

C:  Right. Kim, when we launched Let’s Loop Seattle in April 2012, we reached out to libraries, and they sent their HR and facilities folks. We’ve found libraries to be receptive to loops, including KCLS, Burlington, and Bainbridge Island.

K:  The Seattle-metro area is a diverse region, and libraries are aware of the positive impact they can have on neighborhood communities by reaching out to the various populations. The loop at KCLS turned out to be a lifesaver for me. Best of all, it’s extremely convenient to use. It’s always on. My colleagues are hardly aware of it. They don’t have to turn it on or check its batteries or speak into a microphone or anything. So, it’s very easy to use and offers access to anyone who has hearing loss and t-coil capability.

Holistic approach

C:  One of the things I was not prepared for, and there were many, was that some of the places that already had some sort of communication support were the ones most interested in making improvements!

K:  Yes that is surprising. 

C:  There were and there still are so many places that do not have anything in place to help with communication access. My focus has been on getting more places in the hearing loop, rather than upgrading or replacing existing technology.

K:  I would love it if we could get more access at places like Jazz Alley and The Triple Door. I don’t know that anyone has ever approached them. I haven’t. Though Seattle is ahead of the curve when it comes to deaf access, there are so many venues that still offer nothing. So I wanted to ask what do you do when you are denied access?

Determining need

C:  I’ve never filed a formal complaint, but that doesn’t mean that I won’t. Whenever I’m called to talk to a venue about communication support, I always try to find out exactly why. Is there a patron or group of residents making the request? What is the patron’s preference? What are they offering now? Priority seating, a script? If there’s an assistive listening system, I ask why they want to replace it. This is really important in live theater where actors are not traditionally miked. In having the equipment, the theater may have checked the compliance box, but they have not addressed cultural changes to make the access effective.

With any assistive listening transmission type, the outcome is directly related to the quality of the audio and microphone arrangement. These aspects must be reviewed before a replacement is considered. So many times, we hear that the infrared (IR) system isn’t any good, or the loop doesn’t work well, when the problem can be traced to the original AV/mic situation. True — there are poor loops, outdated IR and inferior FM systems. But many times, inadequate performance can be traced to the human factor. Therefore, we are most adamant that all contracts for a loop system be written to specify the system be installed to meet or exceed the International Electrotechnical Commission (IEC) standard for performance.

K:  How open have various venues been to looping technology compared to other types of accommodations?  

C: Most venues will tell you that they want to do it, it’s just that it costs so much, or aesthetics must be addressed. They don’t want to cut the carpet. One challenge has been the lack of qualified, reputable installers. Facilities that are required to get multiple bids have often been persuaded to choose a different type of assistive listening system.

K:  I am aware that publicly funded building projects are required to get several bids while using performance based standards to determine the lowest bid on comparable work. Given funding constraints and possible confusion over the various listening systems available, I can see why they might choose a less expensive option.

“It’s a great idea, but it costs so much.”

C:  I heard this so often. So I went on a search to find some grant funding. In 4Culture here in King County, we found a wonderful grant source for the arts community. Applications must be completed, and 4Culture makes all the decisions.

Not all vendors who specialize in serving the hard-of-hearing with assistive listening technology install loops. Mainstream AV installers are not incentivized to learn the specifics of loop installation. It’s labor intensive, and it requires training, experience — and math and physics to make it all come together. Often these vendors simply want to sell their specific product, and they don’t really care about the user experience. Thus, many more places than I would like to count have installed a different assistive listening system. Still, I have to count that as a success of sorts . . . It’s disappointing, but I mainly feel bad for the advocate who’s driving the install. Consumers prefer hearing loops almost nine out of ten times. And of course, user-friendly loops are the most likely to get used.

K:  When you find a public venue that doesn’t offer access to the deaf and hard-of-hearing, what is your normal plan of attack if you have one? 

start the conversation

C:  Send an email/letter to start the conversation.

For a specific event, I start with an email to the event planner, or the person noted to contact for additional information, explaining that I’m hard-of-hearing (HOH), and I do not use American Sign Language (ASL). I reference our numbers to indicate that while I am making the request, that I am not alone. Next, I ask what kind of hearing accommodations are put in place. This is a necessary step because it indicates to them any forgotten ADA considerations as well as the deaf/HOH community’s expectations. Also, the question may flush out an assistive listening system that is locked away, that no one knows about. Or arrangements may have been made. Yet, staff are unaware, or they may not have publicized the access.

Depending on the situation, I may wait for a response, or I may expand to describe how I hear in public venues such as theirs. I give examples and describe the process and details of using hearing assistive technology, and I also request CART/captions, (where appropriate). I state how those accommodations will help me participate. “As each person speaks into the microphone, the loop enables me to hear the speaker’s voice clearly, and CART allows me to catch any dialogue I may have missed.” 

For a specific venue. I send something similar, but, depending on the venue, I may reference a program I attended and liked, that I could not hear. I explain how much better it would be if I could understand and participate like others. Or when a venue is in the process of a remodel, I do something similar. I always point to other venues and programs that are accessible.

K:  How often do venues flatly refuse to install a loop and what do you do when that happens?

Pinpoint the Excuse

C:  Yes, it does happen occasionally. I try to pinpoint the excuse, and I hear a lot of them. 

  • We have no plans for hearing assist.
  • The venue doesn’t have an assistive listening system.
  • We aren’t planning to use a PA.
  • It costs too much.
  • We don’t have enough time.
  • We are just a non-profit..
  • Okay, we’ll get an interpreter.  (!!???)
  • We don’t want to spend the money.
  • Too complicated.
  • Nobody else has it.
  • No one has ever asked or complained; we don’t want to. 
  • Our AV guy says his system (insert FM/IR ) is better.
  • The hearing resource center recommends FM or IR.
  • We don’t want to remove the carpet.
  • It won’t look good; we don’t like it.  
  • Mainstream AV are not incentivized and do not have training and pass along false information: “You have to be really careful if you install loops.”: “Loops have too many problems.”: “It’s too expensive.”
  • We don’t want to.

K:  It sounds like you’ve heard every excuse possible.

C:  Right. Once you track down and identify the real excuse, it’s easier to address. When places realize the law requires communication access, most install an assistive listening system. But sometimes they install something else, instead of the loop. They may look for the cheapest system available. Sometimes local resource experts and existing venue contacts persuade them to try something different. They don’t realize that others have their own agendas, or are motivated by profit. Many times, you don’t find out until it’s too late. Folks who do not use the technology, or who have not experienced the hassles of distributing and maintaining equipment really don’t understand the user experience. They make the decisions on our behalf and that’s just wrong. 

clarify the need

Often times, people contact me after asking a venue for accommodations for months, even years. I try to find out from that person exactly the listening situation they are trying to remedy, the problem, exactly what they want, and why. That way I can better work with the person and the venue to come to an agreement that will best meet everyone’s needs.

I use ADA lingo and reference links. I provide testimonials, and I connect folks to people in similar venues. We maintain a list of looped theaters — both local and national. We have a list of looped municipal buildings, too.

Education is Key:

Incorporate the terms: auxiliary aids and services and alternate formats, required by law….and reference similar locations, venues, or programs that are accessible. Reference ADA resources. I point folks to my website where I have a listing of looped venues and information about how to plan an accessible meeting, Communication Access Real-time Translation (CART) resources etc.

Resistance:

Communication Access Relay TranscriptionI don’t think I’ve ever been denied CART. Once, I arrived to see the reader board in place, but the organization didn’t seem to understand it was their responsibility to arrange the Cart reporter! I have built relationships with my local CART providers, CCAC and others. I’ve walked folks (myself included!) through how to set up remote CART. I’ve had venues and CART providers who were unable to deliver as promised. At times, I’ve had to be graciously persistent, to the point of referencing the legal obligation, but I’ve never had an outright denial for CART.

K:  I have been denied CART, but I was persistent and got what I wanted in the end. It was a case of an event planner not understanding ADA laws. Actually, I filed a Civil Rights complaint. I was polite about it, and sent information. After he refused, I did let him know that I would be filing a complaint because he told me flat out the venue wouldn’t pay for CART, and that he had no intention of offering any type of access at all.

Things changed in my favor very quickly after I filed. It turned out the event planner misrepresented the venue’s policy on providing access. The venue sent a nice message within a day and assigned someone else to work with me on access for that event. If I had to do it over again, I would ask to speak to a supervisor before filing — which I think should be a last ditch effort. It was a learning experience for me and the event planner, I think.

 C:  Good for you! Unfortunately, lack of education on the part of event planners is far too common. Loops and HAT are a completely different story altogether. Installing, implementing and utilizing HAT requires not only an investment, it requires others to change their behavior to accommodate your hearing loss.

Captions versus Loops

Seahawks fans break sound record - Elaine Thompson/AP
Captioning access is nice at CenturyLink field, especially when the Seahawks break sound records causing small earthquakes.

K:  Right — There are pros and cons to both CART/captioning and Loops/HAT. I can’t see the hearing loop working in a football stadium, for example.

However, after it is installed, nothing else needs arranging. That means deaf/HOH people can attend every performance, not just the one captioned performance offered during a two week period. The flexibility is nice, especially for working people who may not be excited about commuting to Seattle on a rainy Thursday night to see the one captioned performance offered. You can pick any performance and going to a play can be more spontaneous.

However, all of the Seahawks games have captions, and I love the captioning at CenturyLink and Safeco fields though. One advantage of captioning is that people who don’t use listening devices may also read the captions. That includes signing Deaf, as well as people who are HOH who don’t benefit from hearing devices, and those who speak English as a second language.

C: Kim, did you know the Michigan State basketball stadium is looped?

K:  No — Really?? That must have been a huge undertaking!  I’m not sure it would work for me at CenturyLink field. I actually take my devices off there. The noise is deafening! But I could see it in a basketball or hockey stadium. A very large area to loop, though!

C:  Yes, a perfectly designed, hearing loop, one that meets IEC standards and that’s properly integrated with appropriate AV can benefit a great many folks in the hard of hearing community at each and every performance, each and every day!

K:  Cheri, thanks again for this interview. I have learned a lot about the business aspect of offering access, and the many issues vendors have to deal with when considering ADA laws, funding and city ordinances. It helps to know their viewpoint, and that “no” doesn’t necessarily mean “never.” Things keep getting better and better all the time for those with hearing loss, thanks to people like you. In our next interview, I want to talk more about some of the bills you and others in HLA-WA have been advocating in Washington state. I’m very excited about what’s happening here, and I hope other states follow suit.

 If you are interested in finding out if there is a looping organization in your area, Cheri has listed other loop orgs on her website here.

5 Points of Volunteering

By Chelle Wyatt

Finding your people.

Hearing loss can be lonely. The world feels against you, sometimes your family too. It’s a deep, dark pit of quiet (and tinnitus). If you’re lucky, you wander across a support group like the SayWhatClub and start to feel a little less like a freak.  You begin feeling at home with a bunch of new friends, making meaningful connections.  

After another big hearing drop in 2009, I re-joined the SayWhatClub. Six months after being on the list, someone asked me to volunteer. I hadn’t thought about it, but why not? It wasn’t like I had anything else going on. I had just quit doing hair after 20 something years because I was deaf in noise. My self-confidence was at an all time low. I was cleaning a few houses (not much hearing involved with cleaning), and I had nowhere else to go so yes, why not give of my time.

Point 1: Volunteering opens up other worlds, the 2nd phase of leaving isolation behind.

I became a list representative for a SWC email list. I was introduced to another part of the organization, meeting more who were hard of hearing and gaining new friends. Friends were important because I’d already lost a few because of my hearing loss (I couldn’t “chat” endlessly on the phone anymore). I appreciated my fellow volunteers just as much as I did the others on my email list and over time, one of those volunteers became a very good, dear friend. SWC became my safe place for communication, it’s a written world with no hearing involved.

Point 2: It kept me busy and stopped my negative thinking cycle.    

Being a list rep gave me back some of the responsibility I had been missing. I popped into email often to make sure the list was moving along smoothly. I welcomed new people to the list, trying to make sure their questions were answered hoping to pass on the same sense of home I felt. Occasionally I helped settle differences of opinion, in the spirit of teamwork. It kept me busy and kept my mind off my own troubles.

When the SayWhatClub held a convention in town, I volunteered for that too. I enjoyed being a part of building the con and putting faces to names, gathering more friends in the hearing loss world.

Point 3: Volunteering for SWC gave my own hearing loss a sense of purpose.

Over time, my hearing loss became less of a burden and started to feel like experience to share; on the email list, in the List Rep committee, conventions and writing on the SWC blog. I became a professional full time volunteer, I joked, as I became the List Rep chair. I was reaching out more into the hearing loss world for convention purposes, meeting more people. My self-confidence built back up. I was far from isolated and my hearing loss was asset in this world.

Point 4: Learn new skills while volunteering.

While stepping into my roles, other volunteers with experience supported me along the way. I wasn’t sure about being List Rep chair but the former chair was on hand to answer questions and offer advice when needed. The same with the convention committee, I knew nothing coming in but had the will to learn. I learned to reach out further into the hearing loss world, looking for guest speakers and sponsors. It was all valuable experience and I learned to be a leader again.

Point 5:  It looks good on the resume.

A local part-time job opened at the state Deaf and Hard of Hearing Center as a Hard of Hearing Assistant. The job required teaching classes and giving presentations on hearing loss. I almost didn’t apply for a few reasons. I thrived in the online world. Also, I was still trying to find my way back into doing hair, clinging to my old life, should I give up on that? What the heck I decided, maybe I could do both hair and hearing loss part time so I applied.

 

Which required writing a resume, the first in a long, long time. Adding information to the resume made me realize I had more experience than I thought, thanks to SWC. I learned I could organize events. During the two years I was off from doing hair, I built new skills and worked well with others. Because  I hadn’t been idle, I got the job. I worked part time for 5 years, and in January 2018, it became a full time position.

The hearing loss world gave me a place to belong.
I found my tribe, across the United States and right here in Utah. I never would have pictured myself ‘here’ nine years ago when I was struggling after another big drop in hearing.   And ‘here I am in a whole new life!   I have let go of doing hair almost entirely. Now I embrace the hearing loss community. This is where I belong, and SWC helped me get there.

I encourage others to volunteer, especially if you’re in that pit of isolation. The 

SayWhatClub emphasizes the benefits of volunteering in its Mission Statement. We understand that helping others reduces feelings of isolation, frustration and despair, while enhancing feelings of self-concept and optimism. Open yourself up, and see where it leads. Other SWC volunteers will support you in learning new skills.  What do you want to learn? Where might you go? The

re’s lots of opportunity in SWC.  

Some areas SWC needs volunteer help

  • The SWC website committee needs people to keep the webpage current by checking links and editing pages.
  • Help the Hospitality Committee welcome new people into SWC who inquire on the website.
  • The List Representative Committee could use help on the Facebook groups, and if you’re on an email list already, inquire if they might need help.  Two of the lists are looking for new List Representatives.
  • The Social Media Committee is looking for people to help with the main SWC Facebook page, making memes for SWC, writing on the blog, and would love to have someone make our Twitter account active again.

Remember no experience required, just a willingness to learn.

 

Volunteer

I started doing volunteer work in my early twenties. My ex-husband joined the Marine-Corps as soon as we got out of high school. Not long after our second child was born, they transferred him to Georgia so we packed up and moved from California. It wasn’t easy finding a job with two toddlers so I stayed home with the kids. After about six months I craved adult conversation. When I saw an ad about volunteering for the Navy-Marine Corps Relief Society who would cover babysitting, I jumped on it. I went once a week to their office and would have done three days a week if they had let me. Volunteering got me out of the house, it gave me new friends, kept me social and I felt good about the work I did there.

After a year and a half in Georgia, I moved back to California and I kept up the volunteering. I went to my kids classrooms to help the teachers once a week and I joined the PTA. As the kids grew older, I stopped. It wasn’t cool having mom in the classroom anymore. I took a break from volunteering unsure of what to do until I moved to Salt Lake.

Not long after moving here, I re-joined the SWC again and located the local Hearing Loss Association (HLA) chapter. Within six months, I found myself their president. About a year later, I became involved with setting up the first Walk4Hearing here as well. The SWC Connect list asked if I’d like to become a list representative and I said yes. Since the SWC is holding their convention where I live, I am helping with that too this year. Then I agreed to take a position on the Utah advisory council representing the hard of hearing. I’m a part-time volunteer and all of it is for hard of hearing causes.

I believe in reaching out to others with hearing loss because I remember how alone I felt twenty years ago when mine first started. I had no support and no one to talk to about it all the first five years of wearing hearing aids. Thank goodness for the internet and finding the SWC in the late nineties or I might still be faking it with no clue to the technology available and very little healthy coping strategies. It only feels right that I give back to the SWC for turning my hard of hearing life around.

Today, I am encouraging you to volunteer. Together, we can accomplish a lot. Individually, we struggle. At the local level, I see only a few of us volunteering over and over again. Because of that, I’ve seen some hit burn out and dropping out completely, leaving fewer of us. Now and then someone new comes in and steps up to the plate. It’s heart lifting. “Yes! We can accomplish a little more now,” the rest of us think.

It doesn’t take much to volunteer. Yesterday I sent out a request on an email list (not SWC) for an open position on a board which meets for one hour, once a month. That’s it. It’s an easy board to be on and I learn about what’s going on in our community d/Deaf and hard of hearing wise. No one responded.

On another committee, maybe four of us show up consistently and it’s one that takes ten people to run smoothly. If we had a someone for each chair position, we could away with three hours, at the most, a month. Two of those hours are for the meeting once a month and most of the time, the third hour is not needed. The task is looking really rather large to the four of us right now… almost overwhelming. It’s a good cause so we don’t want to give it up but if things don’t improve this year, we may have to. It’s sad to give up an event that draws a couple hundred or more from the hearing loss community together for one big, fun filled day a year.

Every committee I’m on could use more a little more help. The more volunteers we have, the easier the job is for everyone. One or two hours a month is drop in the bucket. It could be as little as going to your local HLA chapter meeting and supporting their efforts by showing up. See if they need any help with a small task. Ask SWC what you might be able to do for them. Or maybe there’s a desire to volunteer else where in your life. Go for it.

The benefits of volunteering are; it keeps us active, social and it’s an accomplishment that feels good. It also helps to fill in resume gaps. Keeping our brains active help us live a longer fuller life. It’s easy for those of us who are hard of hearing to withdraw, stay home and keep things simple. Resist that once or twice a month. Start slow and easy to keep from getting overwhelmed. Most volunteers I meet have big hearts and loads of patience. I meet some awesome people while volunteering. I would like to meet more.